About Duncan Foundation
The Duncan Foundation is a national support service for people living with neuromuscular conditions, and the health professionals who treat and support them. Our goals are to empower people with neuromuscular conditions to live to their maximum physical potential. The Duncan Foundation will do this provision of comprehensive services and resources available through an innovative website/portal and a national network of specialist clinics and health professionals.
The Duncan Foundation is a new philanthropic service and so will start with supporting people living with the Late Effects of Polio, Friedreich’s ataxia, Early diagnosed Parkinson’s and Dystonia and expand our services to other people living with neuromuscular conditions as we develop.
We aim to provide certainty of diagnoses, effective assessment and referrals where required, and support in the effective management of condition. The Duncan Foundation will fund the assessment and planning phase and work with existing DHB services to utilize existing services. Where needs are not met through existing channels, the Duncan foundation intends to fill that gap by listening to people and their families’ needs and supporting their self-management at a personal level and through community engagement. We intend to develop specialist services such as gait analysis and training, specialist gyms and hydrotherapy, speech, swallowing, sleep and nutrition advice as we find out what people want and need.
Our website will give access to the information needed to provide day to day support, allowing carers and supporters to feel confident about the information they have and the treatment and rehabilitation options available. For practitioners the Duncan Foundation Online knowledge centre provides ‘Best practice’ fact sheets (symptoms and management, assessment guidelines), Info on additional training support or professional supervision and specialised equipment. It will encourage and facilitate Information sharing between practitioners and have a real person on the phone.
Duncan Foundation will we working with other Not for Profit and Community Organisations such as CCS Disability Action, Freemason, Rotary, Gyms, Societies, Patient Support Groups, the Duncan Trust and others as well as Government Organisations and Decision makers including the MoH, Disability Services, Directors of Allied Health, Head Clinical Advisors and Working Groups.
We hope that the impact of our work for people living with neuromuscular conditions with be increased capacity and capability, better participation in normal life, an improved sense of community, enhanced advocacy and policy change, and Improved clinical practice all of which will lead to an improved physical and social environment for people living with neuromuscular conditions.
We currently support: Late Effects of Polio, Friedreich’s Ataxia Early diagnosed Parkinson’s and Dystonia.
Conditions We Support
Established in late 2017, the Duncan Foundation is a new national support service for people living with neuromuscular conditions, and the health professionals who treat and support them. As a new service, our focus will initially be on supporting people living with the late effects of Polio, Friedreich’s Ataxia, early-onset Parkinson’s and Dystonia, and expand our services to other people living with neuromuscular conditions as we develop.
The Duncan Foundation provides access to expert assessment and clinical practitioners who understand the management of selected neuro muscular conditions as well as ongoing support for the person and their families. Our mission is to establish a national support service for people living with selected neuro muscular conditions and the health professionals and caregivers who treat and support them.
Our goal is to empower people with neuromuscular conditions to live to their maximum physical potential.
As set out in the Trust deed, the objects of the Trust include:
- To support or establish a number of clinics in New Zealand that have the capacity to assess people throughout the country who have or have had neurological conditions for the purpose of guiding rehabilitation and ongoing support.
- To develop a national network of affiliated clinicians and health professionals who can work with the clinics to provide the best possible multi-disciplined consultation teams.
- To establish a web-based platform to support the work of the Trust.
- To develop and deliver educational resources so that general practitioners, clinicians, health professionals, and needs assessment and service coordination assessors have the information they need to properly understand those living with neurological conditions or the late effects of those conditions.
- To work with district health boards and public health organisations to integrate the clinics as far as possible with the public health system.
- To work with other organisations which also support those with neuro muscular condition to a) explore opportunities for collaboration and b) avoid duplication.
- To raise funds to support the objects of the Trust.
- To fund the treatment and or equipment needed for the ongoing rehabilitation and support people who have or have had neurological
- To develop and support on an ongoing basis, any other activities related to a neurological condition.